HIV Misconceptions: the “Gay” Disease and its impacts on Black Women

For decades, the Human Immunodeficiency Virus (HIV) has been deemed as the “Gay” Disease due to its prevalence in the LGBTQIA+ community1. This misconception has led to the spread of misinformation and dangerous stereotypes that place many members of the LGBTQIA+ at risk. With the Black community having the highest prevalence rate in the United States2, these misconceptions have bled over into how the community responds to HIV prevention, treatment, and intervention.

bar chart from the health equity tracker showing rates of HIV prevalence at the highest bar with 1245 HIV positive individuals per 100,000k; nearly 4x higher than the national average of "All" people

This misconception has had and will continue to have a detrimental impact on women in the Black community since they are not the focus of preventative measures or medical care. Black women are disproportionately impacted by HIV, since they account for about 54% of new HIV infections in American women but only make up less than 15% of the female population3. This infection rate is not seen in Black women who identify within strictly homosexual relationships but rather 91% of these cases started from heterosexual contact. With this statistic in mind, we must begin to think of HIV as a Sexually Transmitted Infection (STI) that can happen to anyone no matter their sexual orientation and focus on getting people the help they need.

Map of the united states showing rates of new HIV diagnoses for Black Women, by state. New England, DC, Florida, Arizona and Washington State show the worst rates at over 27 diagnoses per 100,000 people.

This can be seen in how preventative measures are being utilized within the US. According to the Centers for Disease Control and Prevention (CDC), the new national estimate in 2018 showed that about 1.1 million Americans overall are at substantial risk for HIV and should be offered PrEP. However, only 90,000 PrEP prescriptions were filled in commercial pharmacies in the year that they studied5. Among all PrEP users in the U.S. in 2021, 92% were male and only 8% were female, even though women comprised 18% of new HIV diagnoses3. Statistics are even lower for the Black community. In the same CDC study, it was shown that approximately 500,000 Black people who could potentially benefit from PrEP were identified but only 7,000 prescriptions had been filled. This raises many issues regarding how information is being disseminated into this community and how we reach people in need. With Pride festivities ongoing, and efforts to continue pushing forward with Ending the Epidemic, we must create messages that are more inclusive when it comes to HIV prevention, education, and intervention so that we can reach more of those in need in other communities.

Stacked bar chart from the Health Equity Tracker showing that the share of PrEP prescriptions for females is under-served by more than half compared to their share of the PrEP-eligible population of newly diagnosed individuals.

For more information on black women and PrEP, please visit: https://blackaids.org/campaign/black-women-and-prep/

Sources:
1. https://www.hrc.org/resources/debunking-common-myths-about-hiv
2. https://www.cdc.gov/hiv/group/racialethnic/africanamericans/index.html
3. https://aidsvu.org/resources/deeper-look-hiv-in-black-communities/
4. https://www.cdc.gov/nchhstp/newsroom/2018/croi-2018-PrEP-press-release.html

Editor’s Note: To learn more about this data and how HIV affects your state and your community, click any of the chart images above, or visit our “Explore the Data” page.

Noah Collins
5 min read
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September 24, 2024
The misconception of HIV as a "gay disease" has dangerously overlooked Black women, who account for 54% of new HIV infections among American women yet represent only 8% of PrEP users, highlighting the urgent need for more inclusive prevention messaging.
by
Autumn McNeill, MPH

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